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Living with Spinal Muscular Atrophy: Measuring Quality of Life
Connie Lamb, Principal
Investigator
Funded by the
Christopher Reeve Foundation
(5/1/2006-4/30/2007)
Abstract
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Connie Lamb
(Ph.D. student) |
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The three objectives for this cross-sectional study are
to:
- Compare health-related quality of life among
children and adolescents diagnosed with Spinal
Muscular Atrophy previously published data from a
population of healthy children.
- Evaluate congruency between the parent's
perception and that of the child/adolescent.
- Establish the feasibility of using a self-report
quality of life measure in a pediatric population
diagnosed with Spinal Muscular Atrophy.
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$12,500 grant, Christopher Reeve Foundation
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