|
Pilot Study: Factors Related to Quality of Life for Adolescents with Asthma and Their Parents
Patricia
Burkhart, Ph.D., Principal Investigator
Mary Kay Rayens, Ph.D., Co-investigator
Funded by the
University of Kentucky Faculty Research Support Program
(11/01/2005-10/31/2006)
Abstract
|
|
|
| |
Asthma is the most common chronic illness among children and
adolescents. This pilot study lays the foundation for a
matched-pairs study with 100 adolescent and parent dyads
from Kentucky and 100 pairs from Reykjavik, Iceland. The
research is innovative in that the sample is cross-cultural
and involves parent-child dyads.
The specific aims of the pilot project are to: (1) assess
the average time needed to complete each set of
pencil-and-paper questionnaires (seven for the adolescent
and four for the parent); (2) determine the acceptability of
the questionnaires to the participants; and (3) obtain
preliminary data to support submission of a proposal for
federal funding (NIH) of a larger study. Fifteen pairs of
adolescents (13 through 17 years of age) with asthma and
their parents will be recruited from the pediatric clinics
at the University of Kentucky. A similar pilot study will be
conducted in Reykjavik, Iceland, by Dr. Erla Svavarsdottir,
the co-principal investigator on the larger study.
Adolescent questionnaires include questions on
sociodemographics, asthma severity and adherence, functional
status of asthma, asthma self-efficacy, depression, coping,
and asthma quality of life. Scales administered to the
parents include: sociodemographics, asthma severity and
adherence, coping, and asthma quality of life. Data related
to the specific aims will be analyzed descriptively.
The purpose of the larger cross-cultural international
study is to develop a model of predictors of health related
quality of life for adolescents with asthma and their
parents. The specific aim is to determine the demographic,
personal, and interpersonal factors that affect the
adolescent’s asthma quality of life, as rated by both the
adolescent and the parent. The long term objective is to
develop an international model of predictors of health
related quality of life for adolescents with asthma and
their parents so that interventions can be designed to
improve adolescent asthma quality of life, stated as a
priority of the Healthy People 2010.
|
|
Top |
